Wednesday, October 22, 2008
1 year later...
One year ago today Riley was diagnosed with Acute Lymphoblastic Leukemia. It's sort of a bittersweet day for me. I mean, look at how far we have come in one year. I say "we" because it truly has affected more than just Riley. During this year we have survived steroids, hair loss, countless pokes and prods, sleepless nights...and amazingly, right now I wouldn't want to go back and change one moment of any of that. It has made us stronger as individuals, as parents, and as a family. This year has brought along many tears of sadness, frustration, and from just being so darn mad at the world that this had to happen to our baby. This year has also brought along many moments of amazement, joy, relief, and a profound appreciation for all of you. We learned very early on that we were definitely not alone if this journey, and you all poured out in groves to offer the world to us. You know that saying that it takes a village to raise a child...we have proven that to be true countless times. I mean it when I say, we would not be here today if weren't for you guys. You have offered prayers, words of encouragement, meals, money, toys...you name it. Thank you.
This past year, Riley has grown into quite the young lady. She is wise beyond her years, and it never ceases to amaze me. No 4 year old should have to know what a port is, or be able to swallow 6 pills at one time. My 23 year old sister still has a hard time taking 1 small ibuprofen. (Love you Shelb!!) Riley can pop 'em back like they are M&M's. 4 year olds should not have to explain why they don't have any hair, or why they can't come to school because the chemo has made her counts too low. But, this 4 year old princess does not let any of that slow her down. She is kicking cancer's booty, and will not stop until it is gone for good. I knew there was a reason our sweet angel was born with her father's hard head, and her mother's care free spirit. Everything happens for a reason, right?!
Please continue the prayers, as our journey is not over yet. Riley still has over a year to go, and we don't want to slow down now. We can only hope this next year flies by even quicker, so Riley can continue to enjoy life as a "normal" kid. We love you all!!!
I had every intention of doing a slide show for this special day, to commemorate Riley's 1 year anniversary...but I just got too busy. I am close to being done, so please check back later.
Riley - October 22, 2007
Waiting for her first bone marrow aspiration with Daddy-10.22.07
Riley-October 22, 2008
Tuesday, October 21, 2008
Quick update
Riley had her monthly check-up yesterday, and everything was perfect. Her blood counts were the highest they've been in a while...her ANC was 2,250! It could be because she's not quite back up to full strength on all her home medicines, we are only at about 75% right now. Depending on her counts in 2 weeks, we will probably then go up to full strength. Riley did receive her monthly dose of Vincristine in her port, and we also began another 5 day pulse of steroids...oh joy! Usually by about tonight or tomorrow she will start showing the side effects of the chemo and steroids together. She gets so exhausted, but doesn't want to slow down any. She will get the darkness around her eyes, and will usually start complaining of leg pain. It only lasts around a day or so, depending on her mood. Oh, the joys of childhood cancer.
Sorry for the short post, I have a lot to catch up on. Hope everyone has a good week!!
Thursday, October 16, 2008
Lady Bee's
My sister, Jen/Nenni, has started an online store for monogrammed items. She has some super cute things, so go show her some love. Oh, and it's named after our one and only Riley-bee...how can you resist that? Go to http://www.ladybeesonline.com/, or just click here if that doesn't work. Thanks guys!!
While I'm giving out plugs, our good friend Cory has started a photography business. He's based out of Austin, but is willing to travel elsewhere for a little extra...even Hallettsville!! Go to http://www.jacksonwrightonline.com/, or just click here to show Cory some love...you will even be greeted by some pictures of my adorable angels.
Sunday, October 5, 2008
My lil' pumpkins
Aunt Shelby grew her own little pumpkin patch, so Saturday we had fun picking our pumpkins and then making a jack-o-lantern.
Thursday, October 2, 2008
Happy Birthday Nana!!
Today is my Mom's birthday!! We love you Nana, and hope you enjoyed your fun day of shopping! Thank you for everything you do for us...we would be lost without you!!
It was pretty cute this morning in the car Riley called Nana to wish her a Happy Birthday, and I guess at some point in the conversation my mom asked her if she was going to come help her celebrate this weekend at her house. Riley told her she would like to come, but that she had not been invited to her party. Nana told her she was invited, but Riley argued with her because she didn't receive the invitation in the mail. So, fair warning to all you readers...if you want Riley to attend your party you better make darn sure you send her an invitation.
Look at my little man as a baby...such a cutie!!
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