The no clinic curse...

Saturday night we got to visit the ER for fever, once again. Riley spiked a fever of 101 around 10 o'clock Saturday night, so off we went to Houston. By the time we got everything together and figured out a plan, it was 1:30 in the morning before we got to the ER. It took another 45 minutes to actually get into a room, so naturally by this time Riley's fever had gone down. They took blood to check on her counts, and per protocol started Riley on an IV antibiotic. Her blood counts came back good, and after the ER doctor talked with the on-call Hematology/Oncology doctor it was decided to give Riley another stronger IV antibiotic and send us on our way. The first antibiotic finished around 3:45 and in the mean time they discovered that Riley's blood sugar had dropped to 44...so we had to wake her up to drink some apple juice and then do a finger stick, it was back up to 99. So, we're thinking they are going to come start up the second antibiotic, let it run for 30 minutes and off we go to get some sleep. Well, they failed to inform us that they can't start the second one until 6 hours after the first one completed. That would have been good to know an hour ago...so finally around 6am we settled in to get what little sleep you can get in this tiny ER room with this tiny ER stretcher and 2 very tiny uncomfortable chairs. God bless Nana, she lucked out with the 2 tiny chairs. She claims she got some sleep, but I'm not believing it. Finally around 10 they came to start the 2nd antibiotic and we were out the door by 11.

One of our discharge instructions was to schedule a follow-up with our regular oncology doctor for Monday morning, and I had rescheduled Riley's Echo appointment for Monday as well...so we decided it would be best for Riley and I to stay in Houston. Riley had a blast, she loves staying in the hotel. So, it was a nice ending to a crazy weekend.

Riley's echo went okay. She wasn't sure what to think of the whole thing, so she would cry and then she was fine. Then she would cry some more, and then she was fine again. They tech tried to bribe her with lollipops and stickers, it worked for a little while until she remebered what was going on. I haven't heard any results, so once again I am going with the theory that no news is good news.

Other than our crazy weekend, things have been going okay. Riley started back up on her nightly chemo pills, and you can tell the difference. She doesn't really eat, and complains about her stomach hurting. The same story as before...nobody knows why. This is what our life will be like for the next couple of years...but we're not complaining!!