Happy Birthday Riley!!!

Today our Riley-bee turns 4 years old!! That is so hard to believe...but so exciting. We celebrated at Nana and Pop's house yesterday afternoon...even crafted a birthday cake out of some leftover wedding cake. Riley thinks we baked it while she was sleeping...she'll never know. We will also celebrate Tuesday with Nani and Papo...a whole week of birthday celebrations!! We are now getting ready to leave for Houston for her doctor's appointment. She is scheduled to get Vincristine, and also start another 5 day round of steroids. I'm not sure if these are count dependent drugs, so depending on how her counts are today we may or may not do this.

The wedding was beautiful and fun . Naturally I did not get any pics on my camera, it was a very busy day. I'm sure someone got some and will send them my way, and I will post them. Hope everyone has a great week!!

We're home!!

We got sprung from the big house around 3:30 this afternoon, and then got to sit in traffic for 2 hours. It was a special treat. We are now in Brenham at Nana and Pops' house getting ready for the big wedding this weekend...there's lots to be done. We are so thankful for all of your prayers and good wishes for Riley to be able to be the most beautiful flower girl you ever did see. I will post pictures next week. Until then...everyone have a wonderful weekend.

Riley-1, Fever-0

So, Riley has finally been fever free for over 24 hours...yahoo! Her fever at 4am...a cool 96.6. Did you guys hold a prayer vigil and not invite me?! It worked whatever you guys did. Her ANC this morning was down a bit at 100. So, we will wait and see what the doctors says...to go, or not to go. That remains the question. I'll keep you posted...in the meantime keep the prayers coming!!!

Some pics from our week so far

We may be getting closer...

Riley did have another temp early this morning of 101.1...but the cut off for what they consider fever is 101. So, I think we may be getting closer. Her ANC this morning is 120, up from 40 on Monday. Her white count is 2,100, hemoglobin is 9.6 (pretty low), and platelets are 186. We haven't seen the doctor yet, so I don't know what, if anything, will change. I will post again when we know more. Later, gators.

Fever, Fever go away...

Riley had another 4am temp spike of 101.8. Not sure why she only seems to spike at 4am, and the rest of the day she stays nice and cool. They weren't going to check her blood counts today, they saw no need since she is still running fever and we are obviously not going anywhere any time soon. The fellow (aka-doctor in training) that comes in bright and early in the morning had nothing new to offer us. We just have to let this viral whatever run its course. Today is the last day that Riley can receive the antibiotic Vancomycin, so they may throw in another one to spice things up a bit. We'll see what happens. In the meantime, everyone set your alarm clocks for 3:30am and start saying some prayers for Riley to not have another 4am fever. We are quickly running out of time to be able to be out of here by Saturday!!
Today also marks the 9 month anniversary of Riley being diagnosed with Leukemia. It truly does seem like the time has flown by...which is always a good thing. We are very lucky that she has mostly done so well with everything. I just hope the remainder of her treatments go so well, and continue to fly by. We are all so ready to be on the other side, looking back and reminiscing on this journey...knowing that everything will have gone how we want it.

Nothing new to report

Same ol' - Same ol' going on here at Hotel TCH. Riley continues to feel great, but spiked another fever early this morning of 102.9. Her ANC has gone up to 40, not so high but at least it is going up...although it can't really go any lower than 0. So, we will be here until no more fevers and her counts continue to go up. She is still on 2 antibiotics, just to protect her from anything else taking advantage of her low counts. The good news is nothing has grown from her blood culture they took Saturday in the ER...they took another one this morning when she spiked again, so we'll see how that one does.
That's all our news for now. We are spending most of our days riding laps around the 9th floor on a princess tricycle, and painting crafts...just having fun passing the time. Until tomorrow...