Steroids+Princess = Ogre!

Once again we are enjoying the fun week of steroids, and you better believe the countdown clock is always on. We're holding our breath, talking softly, and walking on eggshells until it's over. There have been a few bright moments in the weekend - she will pop out and be her usual bright and cheerful self - but those times are far outnumbered. A couple of saving graces have been some of the treasures we picked up at the Disney Store in Austin. With the exception of about a 4 hour window, she has been wearing this Sleeping Beauty "dress" (a.k.a. night gown) all weekend. Said night gown has been seen with a coat, with a t-shirt (though the t-shirt had to go underneath so that it wouldn't cover up Sleeping Beauty's face), and with crocs. Here it is jumping on the trampoline.

She also got an Ariel beach towel that has covered her babies, gone to bed with her, and served as her blanket during her long rocking sessions in the rocker with Mommy and Nana. In addition to the unpredictability that comes with the steroid/chemo combination, we've been nursing a burn on her hand where her chemo was injected on Wednesday when they couldn't access her port. This has been the "sign" and confirmation we needed to decide that we will have her port replaced vs. doing IV's and injections for the rest of treatment. It's crazy to see what those drugs have done to a layer of skin. She started complaining about it late on Thursday night, and it's gone from a red dot, to a puffy red inflamation about 3" in diameter, to a true burn with scar tissue that is now sore and itching. We called and spoke with Dr. Dreyer on Friday, and were prescribed a regimen of Motrin and warm compresses, and some TLC. Better believe they've all been served regularly.

We are going to go get our heart shaped cookies out of the oven, and will continue the countdown until the end of this steroid round. Hope everyone had a Happy Valentine's Day filled with the ones you LUV!