I may regret typing this, but I think Riley may be on the uphill swing. She hasn't ran fever since last night, and is actually eating some of her lunch tray. She does continue to have stomach pain along with the diarrhea, and none of her blood counts have recovered. Yesterday they decided to bring out the big daddy antibiotic, Vancomycine, to treat the bacteria that was found in her urine culture from Saturday. This is what they call a broad spectrum antibiotic, and I think it may have actually helped kick out whatever was causing the fevers. This could also be why her counts have stayed so low. Her ANC is holding steady at 190, which is very low...and she basically has no white blood cells. Her hemoglobin is still a little low, but higher than it was a couple of days ago...and her platelet count is still dropping but hasn't yet reached the point where they would consider doing an infusion. Also, they have finally decided to oblige in our concerns for her tummy problems, and they are going to schedule Riley for an abdominal x-ray this afternoon.
So, all of that to say this...if she continues to have no fevers and her counts miraculously decide to go up we may actually be able to go home late tomorrow or maybe Saturday. So, please keep your fingers crossed on the fever issue.
As far as 9th floor TCH news there is a sweet young lady named Victoria who was waiting to be scheduled for her second bone marrow transplant. In the mean time she started getting fungal infections, and it is now in her blood and moving throughout her body. She is a very sick and her family is now having to face the possibility of life without their baby girl. She is loved by many of the families and staff of TCH so this is going to be very hard for everybody. Please keep Victoria and her family in your prayers, I can't even begin to imagine what they are going through right now. But, on a brighter note our sweet little neighbor Chloe is having a birthday today and they have big plans for celebrations throughout the day. They passed out cupcakes and lucky for me Riley isn't into sweets right now...which meant more for me!! So much for my new year diet being in this place...all they have is fast food and junk. Maybe next week I will start fresh...
Thursday, January 10, 2008
So close to being home...
Posted by Kari at 2:06 PM
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2 comments:
We have been tracking Riley's journey since receiving the link from Jamie. Presley saw the picture of Riley and just loved her boots. When she saw the picture of Riley dressed up as a princess, she said her crown was quite pretty! Please know that we are sending awesome thoughts and prayers from our hearts here in Missouri. What an amazing little girl you guys have!
-Rachel
The sun is shining here today so it would be a wonderful day to come home. I hope this is the day. Keep up the positive thoughts and I am sure better days are around the corner. Thinking of you always. Love, Christa
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